53:47
Hemophilia Video Podcast - BloodStream - Episode 7 [December 19th, 2016]
BloodStream Media
1:05:36
Hemophilia Video Podcast - BloodStream - Episode 5 [October 17th, 2016]
1:01:47
Hemophilia Video Podcast - BloodStream - Episode 4 [September 19th, 2016]
48:56
Hemophilia Video Podcast - BloodStream - Episode 3 [August 22nd, 2016]
52:23
Hemophilia Video Podcast - BloodStream - Episode 2 [July 18th, 2016]
44:16
Hemophilia Video Podcast - BloodStream - Episode 1 [June 20th, 2016]
1:04:23
Hemophilia Video Podcast - BloodStream - Episode 6 [November 21st, 2016]
1:09:28
Hemophilia Video Podcast - BloodStream - Episode 9 [February 20th, 2017]
58:12
Hemophilia Video Podcast - BloodStream - Episode 8 [January 16th, 2017]
1:19:23
Hemophilia Video Podcast - BloodStream - Episode 10 [March 20th, 2017]
1:03:34
Hemophilia Video Podcast - BloodStream - Episode 11 [April 17th, 2017]
31:15
Von Willebrand Disease Podcast - BloodLine - Episode 3
31:03
Von Willebrand Disease Podcast - BloodLine - Episode 2
23:57
Von Willebrand Disease Podcast - BloodLine - Episode 1
1:07:40
Hemophilia Video Podcast - BloodStream - Episode 12 [May 15th, 2017]
51:00
Hemophilia Video Podcast - BloodStream - Episode 15 [August 21st, 2017]
1:18:42
Hemophilia Video Podcast - BloodStream - Episode 13 [June 19th, 2017]
1:06:10
Hemophilia Video Podcast - BloodStream - Episode 14 [July 17th, 2017]
50:00
Hemophilia Video Podcast - BloodStream - Episode 16 [September 18th, 2017]
1:22:06
Hemophilia Video Podcast - BloodStream - Episode 17 [October 16th, 2017]
31:16
Hemophilia Podcast: The Factor Revolution! Episode 3: Safety, Vigilance and New Frontiers
28:19
Hemophilia Podcast: The Factor Revolution! Episode 1: The Revolution Begins
49:34
Hemophilia Podcast: The Factor Revolution! Episode 2: The Contamination Crisis
1:27:37
Hemophilia Video Podcast - BloodStream - Episode 19 [December 18th, 2017]
1:09:52
Hemophilia Video Podcast - BloodStream - Episode 20 [January 15th, 2017]
1:17:30
Hemophilia Video Podcast - BloodStream - Episode 18 [November 20th, 2017]
1:13:10
Hemophilia Video Podcast - BloodStream - Episode 21 [February 19th, 2018]
1:00:48
Hemophilia Video Podcast - BloodStream - Episode 22 [March 19th, 2018]
1:08:46
Hemophilia Video Podcast - BloodStream - Episode 23 [April 16th, 2018]
1:05:18
Hemophilia Video Podcast - BloodStream - Episode 24 [May 21st, 2018]
1:08:14
Hemophilia Video Podcast - BloodStream - Episode 25 [June 18th, 2018]
1:11:53
Hemophilia Video Podcast - BloodStream - Episode 26 [July 16th, 2018]
1:09:29
Hemophilia Video Podcast - BloodStream - Episode 27 [August 20th, 2018]
1:10:23
Hemophilia Video Podcast - BloodStream - Episode 28 [September 17th, 2018]
2:11:58
Hemophilia Video Podcast - BloodStream - Episode 29 [October 22nd, 2018]
1:07:54
Hemophilia Video Podcast - BloodStream - Episode 30 [November 19th, 2018]
41:40
Hemophilia Video Podcast - BloodStream - Episode 31 [December 17th, 2018]
1:23:48
Hemophilia Video Podcast - BloodStream - Episode 32 [January 21st, 2019]
1:24:54
Hemophilia Video Podcast - BloodStream - Episode 33 [February 18th, 2019]
1:39:56
Hemophilia Video Podcast - BloodStream - Episode 34 [March 18th, 2019]
1:53:03
Hemophilia Video Podcast - BloodStream - Episode 35 [April 15th, 2019]
23:37
Hemophilia Video Podcast - BloodStream Special Episode: World Hemophilia Day [April 17th, 2019]
1:33:29
Hemophilia Video Podcast - BloodStream - Episode 36 [May 20th, 2019]
1:32:52
Hemophilia Video Podcast - BloodStream - Episode 37 [June 17th, 2019]
1:12:44
Hemophilia Video Podcast - BloodStream - Episode 38 [July 15th, 2019]
1:27:09
Hemophilia Video Podcast - BloodStream - Episode 39 [August 19th, 2019]
1:57:22
Hemophilia Video Podcast - BloodStream - Episode 40 [September 16th, 2019]
1:51:12
Hemophilia Video Podcast - BloodStream - Episode 41 [October 21st, 2019]
1:18:17
Hemophilia Video Podcast - BloodStream - Episode 42 [November 18th, 2019]
53:09
Hemophilia Video Podcast - BloodStream - Episode 43 [December 16th, 2019]
36:35
Hemophilia Video Podcast - BloodStream - Episode 43a - Special Episode [January 6th, 2020]
1:11:52
Hemophilia Video Podcast - BloodStream - Episode 44 [January 20th, 2020]
21:21
BloodStream MINI - Dr. Laura Fox
35:30
LIVE on Facebook, Goodbye Kobe + Amy Board from Ask The Expert
13:40
BloodStream MINI - Valentine's Day Special ft. Avra Friedman
59:42
Hemophilia Video Podcast - BloodStream - Episode 45 [February 17th, 2020]
42:17
BloodStream MINI - Nic Novicki
36:06
BloodStream MINI - Luke Pembroke - Gene Therapy Clinical Trial for Hemophilia B
25:49
Rare Disease Day special w/ Rebecca Stewart & Nicola Miller from Rare Revolution Magazine
1:07:07
BloodStream @ NHF Washington Days (#NHFWD) 2020
55:04
BloodStream MINI - Natasha Chandel - Lyme Disease Diagnosis Odyssey
44:49
Hemophilia Video Podcast - BloodStream - Episode 46 [March 16th, 2020]
53:53
BloodStream LIVE: Investigational Gene Therapy w/ Dr. Doris Quon
31:26
BloodStream MINI - Michael Bishop, Amy Board + Community Updates
28:22
BloodStream MINI - Factor Revolution Episode 1
49:42
BloodStream MINI - Factor Revolution Episode 2
31:49
BloodStream MINI - Factor Revolution Episode 3
1:12:28
Hemophilia Video Podcast - BloodStream - Episode 47 [April 20th, 2020]
35:57
Rich Pezzillo - Blood Brother Catchup - BloodStream LIVE
1:11:20
Hemophilia Video Podcast - BloodStream - Episode 48 [May 18th, 2020]
34:40
Trevor Martin - Country Music Singer/Songwriter - BloodStream LIVE
43:31
Debbie de la Riva - Pain, Stress, and Coping - BloodStream LIVE
39:50
BloodStream MINI - Bleeding Disorders Community Snapshots
1:12:55
Racism in America: A Special Episode
30:41
Connie R. Faltynek - The Science and Culture of Pain - BloodStream MINI
1:24:16
Hemophilia Video Podcast - BloodStream - Episode 49 [June 15th, 2020]
58:37
One PREGNANT Episode: COVID & Von Willebrand Factor + NHF’s Nikole Scappe on Virtual BDC!
50:33
Special Episode - The 72nd Annual Bleeding Disorders Conference is in the Books!
54:58
Making Movies (like Bombardier Blood) is Hard! - Special Crossover Episode!
1:15:27
Gene Therapy for hemophilia must wait, for now.
54:59
Child-abuse pediatricians, career-building with bleeding disorders, and #HFA2020
52:21
Rare Disease Parenting with Bo Bigelow, 9/11, and Deer in Ohio
34:27
Honoring Roy Ginder, Husband of Jeanne White-Ginder
1:23:22
Self-infusion, RBG, sickle cell, ACA, and concerns about gene therapy
1:06:40
NORD’s Lisa Sarfaty, Germantown’s Jim Fenerty, and Woe to the Denver Broncos
37:37
Mental Illness Awareness Week with Debbie de la Riva
41:30
Unite for Bleeding Disorders with NHF’s Elizabeth Molnar
1:09:46
The People Have Spoken (about Copays) and SOBOing for Save One Life!
42:22
Mischief Night - Halloween special w/ Haunting Season’s Joshua Sterling Bragg
56:00
ICER’s Hemophilia A Report, NHF’s Insurance Conference, and Black Women For Wellness
1:07:09
The election’s over, so now what!? Plus, saying goodbye to Ziggy
52:42
Holidays & Vaccines, ACA Enrollment, and NoStressMS Founder Damian Washington
49:10
Happy Thanksgiving! + Philadelphia Youth Basketball CEO Kenny Holdsman
39:05
World AIDS Day w/ Jeanne White-Ginder
39:09
#ASH20, #GivingTuesday, and a child changing the world
39:29
Mind-blowing gene therapy news, exciting emi data, and hemophilia in People Magazine
1:14:38
State-based advocacy with NHF’s Bill Robie and Nathan Schaefer
52:38
Diversity and inclusion with Alexa Abreu
51:31
Dr. Robert Sidonio on vWD, WWBD, and the hemophilia pipeline headed into 2021!
49:55
Vaccine Q&A, FLOW hosts, a BIG WIN for healthcare, & remembering Max Goddard
32:45
Von Willebrand Disease finally has some “guidelines” + The Color of Autism’s Camille Proctor
47:25
Hematologists on Twitter and Irish Haemophilia Society CEO Brian O’Mahony
53:07
38 weeks pregnant, tweeting Chrissy Teigen, and musical talent Tamar Mitchell
56:42
Hemlibra in Canada, Amy’s Birds, and Once Upon A Genes’ Effie Parks
45:05
Gene Therapy & vWD updates, #EAHAD2021 + (S)hematologist Dr. Angela Weyand
25:54
Why Chronic Pain Stories Matter + a ‘lil Surprise from Bloodstream!
5:40
What is Bleeding Disorder Awareness Month?
24:47
A Fitusiran Clinical Trial Update and Nikole Scappe Co-Wrote A Book!
9:18
So, what is hemophilia?
21:03
A Moment for Isolation - with Joshua Sterling Bragg and Debbie De La Riva
32:40
Doug Kerr from Generation Bio on Investigative Non-Viral Gene Therapy and More!
13:23
International Women's Day / Spotlight on Women with Bleeding Disorders
14:16
Caregivers: Having a loved one with a bleeding disorder
20:31
HIV & HepC in the community today with Rebecca Hill
30:40
A Moment for Depression
39:01
Max Feinstein is Using His Music to Promote Hemophilia + Breaking Through & Better You Know Campaign
20:21
Spotlight on Adult Men with Hemophilia with Jeff Johnson
35:49
The LGBTQ+/Bleeding Disorder Experience
10:12
What's the experience like for people of color with bleeding disorders?
21:43
A Moment for Imposter Syndrome
1:18:24
The Birth Story: Welcome Vivian Bea!
17:03
On Grief: a Conversation with Dana Francis
8:48
The Value of Our Regional Chapters
8:52
What is MASAC Exactly?
23:10
A Moment for Trauma
53:10
Patrick’s back + diet, pain, and our complex relationships to food
13:14
Spotlight on Puerto Rico
10:19
World Hemophilia Day and Global Health (Spanish Language Episode)
4:12
A Closing Word with NHF CEO, Dr. Len Valentino
1:11:48
Delisa O’Brien & Laurence Woollard: curative therapies, COVID, & “the lost generation”
42:57
Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen
52:35
Baby on Tour, Shared Decision Making + the ACA is here to stay!
58:29
BDC Preview Party w/ NHF Staff
40:01
Hematologists weigh in on the state of science in bleeding disorders
55:02
Luke Pembroke gene therapy clinical trial catchup + pain and storytelling w/ Mel Forrest
46:41
Informed consent for hemophilia gene therapy w/ Laurence Woollard, Dakota Rosenfelt, Richard Gorman
57:49
Diversity, Equity, and Inclusivity in Bleeding Disorders w/ Connie Montgomery
36:39
State of the Organizations w/ Dr. Len Valentino & Sharon Meyers
56:52
Patrick and Amy’s Top Ten Top Ten Lists of 2021
42:39
Save One Life and WFH plus updated gene therapy trial news!
43:28
Val Bias, a tribute: "Life's work is in the getting there."
53:25
Let’s celebrate Rare Disease Day with Brendan Hayes and a Let’s Talk from Josh Bragg!
55:55
Living Beyond the Diagnosis w/ Kristin Eilenberg of EE Minds
1:18:39
Solo Dad Life, MASAC Meeting, and Thalassemia in the News(room)!
1:00:53
Live from HFA w/ Keynote Speaker, Adar Cohen!
1:17:47
Journey to Joint Health Panel - LIVE from HFA!
44:50
Women prioritized at World Congress and coping with loss for Mental Health month
1:13:01
Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!
1:01:48
Thalassemia’s dynamic duo, Dr. Kevin Kuo & Dr. Hanny Al-Samkari, plus aging & changing on Let’s Talk
1:19:41
The Making of The Final Summit and Science Making a Difference in Rare Disease
50:29
Sexual health and bleeding disorders
45:14
A women’s movement’s a brewin’
41:20
Pain, Mental Health, & Life Updates w/ Cazandra Campos-Macdonald & Laurence Woollard
1:24:07
Panel: Diversity, Equity & Inclusion in bleeding disorders, plus “living in the moment.”
58:28
Patrick’s new freedoms and restrictions post-op, Michelle Conde, the Glanzmann's Research Foundation
1:00:00
It’s gratitude season, plus takeaways from WFH Gene Therapy Roundtables!
47:17
Gene Therapy has finally arrived (kinda)
57:38
A Year in Review with NHF CEO, Len Valentino!
38:35
Legislative wins and losses & CDC’s Aditi Kantipuly
44:48
Dr. Steven Pipe on hemophilia B’s first gene therapy, HEMGENIX
30:03
Talking Black History Month with Connie Montgomery and a Let’s Talk Segment featuring Mike Hargett
Washington Days and Amy’s Big Win
Dear Hemophilia Community: A Warning
52:08
Rare Disease Day and "Living in the Almost"
3:29
Clive Smith and the UK Contaminated Blood Scandal
43:25
Own Your Path
47:35
BloodStream - So, We Hit a Nerve
42:25
World Hemophilia Day and new music from Tamar Mitchell
1:00:42
The Ethics of Gene Therapy and a conversation with Gunnar Esiason
54:50
Fitusiran Overview with Dr. Guy Young
41:06
BloodStream Podcast: SHEmophilia, Music, and Michael Bishop
35:18
BloodStream Podcast: World Sickle Cell Day & Sing Me A Story
44:46
Music w/ Max Feinstein and FLOW with Jessica Lauren Richmond
44:09
BloodStream Podcast: Gene Therapy for Hemophilia A is Here
35:48
BloodStream Podcast: NHF Rebrand with Len Valentino & SHEmophilia with Priscilla Oren
27:25
Taylor Swift changes Amy’s life, plus a new segment, and other stuff.
36:14
Patrick and Amy’s BDC Recap!
31:57
Embracing Change in Hemophilia Care and Back to School
54:00
Dr. Akshat Jain and NHL Coach David Quinn
55:28
Sexual Intimacy, Artificial Intelligence in Healthcare, and Mindset
35:34
Rugby & Hemophilia and Treatment Transitions with Mosi Williams
22:08
Resisting Change and Holiday Dynamics
44:10
The Dark Side of Resilience + The Gratitude Game
33:41
The World Health Organization (WHO) Gets it Wrong
40:35
SNL Screws Up Sickle Cell
45:27
Shakeup at HFA and a brand new Gene Therapy segment!
49:35
Preserving Tainted Blood History and Bath Bleeds (?!)
28:50
NBDF Welcomes New CEO | HFA Responds
1:08:50
HFA CEO Dan Kelsey and Rare Disease Day Tribute
44:04
Highlights from ASH with Dr. Akshat Jain
45:09
Dr. Glenn Pierce on the WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Birkman
Dr. Glenn Pierce on the WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
38:55
New NBDF CEO, Phil Gattone
38:37
On the Shoulders of Giants is a hit (!) and I’m Fine is back
25:45
Navigating the Currents: Interferons in the Treatment of Polycythemia Vera
52:26
UK Blood Inquiry Clive Smith & Laurence Woollard
56:20
Mild Hemophilia Matters
28:21
Life with an Invisible Disorder
1:02:23
The Multi-Faceted Role of HTC Social Workers
43:37
Clinical Trials, Caregiving, and NEW MUSIC!?
