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Global Foundation for Peroxisomal Disorders
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• The GFPD's Mission: To improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

• Through these connections with medical and scientific professionals and family support networks, our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum, (including those formally known as Neonatal Adrenoleukodystrophy (NALD) and Infantile Refsum Disease (IRD), as well as single enzyme disorders D-Bifunctional Protein Deficiency (DBPD) and Acyl-CoA Oxidase Deficiency (ACOX deficiency).

• A peroxisomal disorder on the Zellweger spectrum means that the peroxisomes in your cells aren’t working properly, are absent, or are severely decreased.

• Peroxisomes are necessary for cell function, normal brain development, and the formation of myelin.

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7:35

GFPD | Rare Disease Day Capitol Hill Training | David Lapidus

Global Foundation for Peroxisomal Disorders

Shared 1 week ago

52 views

1:04

GFPD | 15 Years of GFPD Warriors

Global Foundation for Peroxisomal Disorders

Shared 2 weeks ago

47 views

54:24

GFPD Care in Action: Empowering Caregivers Webinar

Global Foundation for Peroxisomal Disorders

Shared 2 months ago

634 views

4:17

Eddie and Jennifer Day Palliative Care and Hospice

Global Foundation for Peroxisomal Disorders

Shared 2 months ago

308 views

1:48

GFPD | Shinning on light on Caregiver Self Care - Family Caregivers Month

Global Foundation for Peroxisomal Disorders

Shared 3 months ago

190 views

1:16

PAUSE for The GFPD on October 5th!

Global Foundation for Peroxisomal Disorders

Shared 3 months ago

945 views

1:13

Ryan Maple highlights upcoming GFPD Events

Global Foundation for Peroxisomal Disorders

Shared 4 months ago

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1:34

Newborn Screening: Now What?

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Shared 4 months ago

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1:17:01

Helpful Advocacy Tips for Parents at IEP Meetings

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Shared 5 months ago

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1:24

GFPD | The Challenges of Researching Peroxisomal Disorders & All Rare Diseases

Global Foundation for Peroxisomal Disorders

Shared 5 months ago

186 views

48:06

GFPD Training Series: Why We Use Hand-UNDER-Hand Facilitation

Global Foundation for Peroxisomal Disorders

Shared 5 months ago

210 views

41:34

GFPD Training Series: “It’s a Sensory Thing!” – What does that even MEAN?

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Shared 5 months ago

230 views

1:53

GFPD | What School looked like for Angela, a #GFPDWarrior

Global Foundation for Peroxisomal Disorders

Shared 5 months ago

4.3K views

40:51

GFPD | Patient Registry for Peroxisomal Disorders - How to Webinar - July 2024

Global Foundation for Peroxisomal Disorders

Shared 6 months ago

675 views

1:35

GFPD | Possible Early Signs and Symptoms from Jennifer Knox

Global Foundation for Peroxisomal Disorders

Shared 6 months ago

53 views

1:11

GFPD | Patrick's Favorite Holiday! #GFPDWarrior

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Shared 6 months ago

7 views

2:14

GFPD | Who can benefit from deafblind resources?

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Shared 7 months ago

29K views

2:45

GFPD | The Impact of Rare Disease

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Shared 7 months ago

12K views

1:09

Daniela Vargas Ramirez - GFPD Warriors and EL-PFDD Presenter

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Shared 9 months ago

42 views

1:44

GFPD | Patient Ambassador Jayla: The benefits of attending the Family & Scientific Conference

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Shared 10 months ago

28 views

1:35

Melissa Bryce, Executive Director, to step down in September 2024

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Shared 10 months ago

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0:38

GFPD | Feeding Tube Awareness Week

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Shared 11 months ago

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1:05

GFPD | Rare Disease Day February 29, 2024

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Shared 1 year ago

903 views

0:37

See you in DC!

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Shared 1 year ago

215 views

5:10

GFPD | Dr. Mousumi Bose EL-PFDD Video

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Shared 1 year ago

127 views

1:30

GFPD | Apply for the May 2024 Conference Fellowship!

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Shared 1 year ago

17K views

1:56

GFPD | Family & Scientific Conference - A Look Inside

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Shared 1 year ago

160 views

34:45

GFPD | Webinar - Palliative Care: Who Needs It?

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Shared 1 year ago

42 views

2:21

GFPD | Why Study a Rare Disease?

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Shared 1 year ago

129 views

3:17

Making Time With Mel: Giving Season Board Meeting

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Shared 1 year ago

53 views

1:01

GFPD | We Are Thankful for YOU!

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Shared 1 year ago

40 views

2:45

GFPD | The Impact of Peroxisomal Disorders: Be Part of the Cure

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

206 views

0:58

GFPD | Pat on Pat DAD CHAT - Community

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Shared 1 year ago

31 views

48:40

Symptom Prevalence and Management for Peroxisomal Disorders

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Shared 1 year ago

152 views

3:07

Making Time with Meloton - Walk, Run, Ride Edition

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Shared 1 year ago

21 views

1:37

GFPD | TVI & OM, Sara Borlie

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Shared 1 year ago

145 views

5:10

GFPD | How To Start Your 2023 WALK • RUN • RIDE Fundraiser!

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

27 views

1:56

GFPD | 2023 Patient Ambassador Series: Caregiver Self-Care

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Shared 1 year ago

80 views

2:14

GFPD | 2023 Patient Ambassador Series: Physical Therapy for Our Warriors

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Shared 1 year ago

112 views

1:16

PAUSE for The GFPD on October 5th, our Worldwide Awareness Day for Peroxisomal Disorders

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

213 views

0:53

Hues for HOPE 2023

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

19 views

48:32

GFPD WEBINAR: Navigating Family Planning After a Rare Diagnosis

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Shared 1 year ago

20 views

50:31

2022 GFPD Family & Scientific Conference: Research Grant Updates

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Shared 1 year ago

10 views

0:58

GFPD Warrior Education Series | Pat on Pat: Rock Ride Memory

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Shared 1 year ago

23 views

59:44

2022 GFPD Family & Scientific Conference: Positive Looking With Your Child

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

25 views

58:27

2022 GFPD Family & Scientific Conference: GFPD Scientific Advisors Panel

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Shared 1 year ago

25 views

39:46

2022 GFPD Family & Scientific Conference: PEX1 Retinal Gene Therapy project update

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Shared 1 year ago

95 views

1:21:20

2022 GFPD Family & Scientific Conference: Therapies for N-of-1 and Individualized ASO Therapies

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Shared 1 year ago

40 views

43:43

2022 GFPD Family & Scientific Conference: Professional Panel | Building a Collaborative Team

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Shared 1 year ago

21 views

1:04

Bereaved Parents Post

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Shared 1 year ago

36 views

22:20

2022 GFPD Family & Scientific Conference: Retinal Gene Therapy Session

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Shared 1 year ago

79 views

43:05

GFPD WEBINAR: Considerations for Managing Hearing Loss in Peroxisomal Disorders

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

53 views

1:11

GFPD | 2023 Patient Ambassador - Patrick's Favorite Holiday!

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Shared 1 year ago

40 views

38:00

Patient Focused Drug Development For Peroxisomal Disorders: What is it? How can I be a part of it?

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Shared 1 year ago

84 views

1:07

GFPD | Deaf-Blind Simulation: A perspective on the experience of our GFPD Warriors

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Shared 1 year ago

650 views

4:43

Blood Draw Tips for your GFPD Warrior

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Shared 1 year ago

38 views

1:28

GFPD | 2023 Patient Ambassador - Pat On Pat: Dad Chat Series | Favorite Memories

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Shared 1 year ago

38 views

0:58

GFPD Warrior Education Series: 2021 Patient Ambassador, Elijah - Father's Day Video

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Shared 1 year ago

32 views

1:52

GFPD | 2023 Patient Ambassador - Teacher of the Deaf, Jenny Upperco

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

184 views

1:03:38

GFPD Webinar: Hopeful Hearts Webinar

Global Foundation for Peroxisomal Disorders

Shared 1 year ago

57 views

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