Debra
DEBRA Ireland is the national charity established by parents in 1988 to provide patient support services and to drive research into treatments and cures for those living with the genetic skin condition, epidermolysis bullosa (EB). People with EB, have skin that is as delicate and fragile as the wings of a butterfly and just as easily damaged. The condition is extremely painful and leads to disability and deformity. Many of our patients who survive childhood face the frightening reality that they could develop a very aggressive form of skin cancer, due to the constant breakdown of their skin.
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Emma Fogarty calls on Minister for Health to meet with Debra, a small ask that can have a big impact
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